Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) are rare neurological conditions that lead to difficulties with balance, movement, vision, speech and swallowing. At least 4,000 people are living with PSP in the UK at any one time, but this figure could be much higher as sadly the condition is often undiagnosed, or misdiagnosed.
There are no treatments for PSP and CBD and there is no cure. The PSP Association (PSPA) offers support and information to people living with PSP and CBD, while funding research into the condition. A diagnosis of these conditions is devastating one but our aim is that those affected do not feel they have to face the future alone. We rely entirely on voluntary donations. PSPA is a small, Northamptonshire-based charity that works nationwide. Our local volunteer-led groups, provide essential support networks for those affected by PSP and CBD and our helpline offers vital information and support.
The rarity of PSP and CBD means many health professionals are unaware of the conditions. We work hard to raise awareness, to enable them provide the best care. We also fund crucial research into PSP and CBD in the hope that treatments, and ultimately a cure, will be found.
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