The MND Foundation is committed to ensuring the people and families living with MND are looked after as they should be from Diagnosis to End of Life. The Foundation will help provide MND hubs, wherever there is such need, the first being located in Essex. These Centres will ease the suffering of the families affected by MND by offering a single venue with coordinated care including all the required clinical specialities at a single visit.
MND Nurse coordinators will lead this all-embracing support at the centres or, at the individual’s choice via video call or home visit when disability is profound.
Regular follow ups will be offered by the Coordinator to ensure that any deterioration or new support requirement is accessed promptly by the family to avert suffering and/or unnecessary inpatient visit to hospital.
In addition, the MND Foundation will fund research to target finding a cure for all individuals living with MND.
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