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The SMA Trust

The SMA Trust is dedicated to finding a cure and treatments for Spinal Muscular Atrophy (SMA). Spinal Muscular Atrophy is a progressive, genetic, neuromuscular condition, causing gradual weakness in the muscles we use for sitting, standing, walking, using our arms/hands as well as swallowing and breathing.  There are 3 main types of SMA – Type 1 is the most severe and also the most common. 

This little-known condition is the leading genetic cause of death in infants under 2’s.  Furthermore, 1 in 40 of us is a carrier of the gene. Although historically babies diagnosed with Type 1 have had a poor prognosis, a pioneering new treatment now means that many will live longer and be able to do more.

The SMA Trust is at the forefront of funding new research which increases understanding of SMA and leads to other new treatments and one day a cure for those living with SMA.

The Trust is the only UK charity solely dedicated to funding research into the condition and currently fund over 75% of UK charity funded research


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